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Toddler is first UK patient to have revolutionary drug for fatal condition, but it 39  too late for her sister, 3, with same disorder                15 February 2023, 07:15            Teddi and older sister Nala.            Picture: Alamy                        By Kit Heren    stanley cup website              @yung_chuvakA little girl is the first patient in the UK to have an expensive but revolutionary gene therapy for a fatal condition - but the drugs have come too late for her older sister with the same disorder.        Listen to this article    Loading audio...Teddi Shaw, aged 19 months, has metachromatic leukodystrophy  MLD  but may be able to have a normal life after Libmeldy was approved on the NHS for the inherited condition, which causes serious damage to the nervous system and organs, dramatically cut stanley spain ting life expectancy.  Libmeldy had a list price of 拢2.8 million when it was approved last year, but NHS England reached agreement with the firm Orchard Therapeutics to offer it at a discounted price.  Libmeldy correct the genetic cause of MLD by inserting functional copies of a faulty gene into the patients own stem cells. Teddi, from Northumberland, is now a healthy and happy toddler and shows no signs of MLD.    Teddi with Nala.            Picture: Alamy    But her sister Nala, 3, has the same condition and is too old to be treated with Libmeldy.Mrs Shaw said: q stanley cup uot;In April last year, our world was turned upside down when not one but both of our daughters were diagnosed with MLD Ztia UN raises alert for 780,000 people displaced in Mozambique, most due to violence in north
Truffles Fine Foods will soon be serving up some tasty fare at Anvil Centre.Nin Rai, owner of Truffles Fine Foods, said the new caf茅 in Anvil Centre will features some of the items now offered by his catering company. We will have soups, sandwiches, breakfast items, a special coffee, pastries, little bite-size canap茅s,  said Rai.  We have a lot of local fare. We dont use any big suppliers. We try to support local as much as possible. Truffles Fine Foods caf茅 is expected to open within the next two months. We are hoping for February, but I think its going to be stanley water bottle  late February o cups stanley r March,  Rai told The Record.  We are ordering equipment and special tiles in. Truffles Fine Foods will be open at 33 Eighth St., across from the SkyTrain station and next to the entrance to the office tower. Its expected to be open 7 a.m. to 6 p.m. most days, with later openings anticipated in the summer.Truffles Fine Foods at Anvil Centre will be similar to its caf茅 at VanDusen Gardens in Vancouver.In addition to operating the caf茅 in Anvil Centre, the city also awarded the catering contract for Anvil Centre to Truffles Fine Foods. Its been catering events at the facility since the fall. Its been busy,  Rai said.  Big gatherings, small gatherings, all sorts of stuff from like 15-person coffee breaks to 500 persons nigh stanley cup ttime events. Its been quite busy there. Rai estimates Truffles has catered about 15 events since Anvil Centre opened in September 2014. Its been really good. I think the reception has be
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Dacm Syrian court accepts 3 candidates to run for president
Economy shrinks by 0.1% as inflation battle rages and recession fears grow                12 August 2022, 07:15 | Updated: 12 August 2022, 08:06            The economy shrank by 0.1% between April and June.            Picture: Alamy                        By Sophie Barnett            The UK economy shrank by 0.1% between April and June after growing in the first three months of the year, official figures show. Analysts say the decrease was mainly down to the test and trace and vaccine programmes being wound down - but many retailers also had a tough q stanley cup uarter.The figures come as the UK continues to grapple with inflation, and the Bank of England has stanley becher  forecast that we will plummet into a recession towards the end of this year.The downturn is expected to last for the entirety of next year.Commenting on the 0.1% contraction, the Office for National Statistics  ONS  director of economic statistics Darren Morgan said:  With Mays growth revised down a little and June showing a notable fall, overall the economy shra stanley mug nk slightly in the second quarter. Health was the biggest reason the economy contracted as both the test and trace and vaccine programmes were wound down, while many retailers also had a tough quarter.Read more: Britain is heading for long recession, Bank of England warns as it imposes biggest interest rate rise in 27 yearsTruss insists recession not inevitable as Sunak warns she will make things worse These were partially offset by growth in hotels, bar Kvyg Outlook for humans appears   39;very bleak  as new study reveals when humanity could be wiped from Earth
Stay hydrated, keep cool and check in on the vulnerable people in your life.The City of New Westminster is issuing that message to local residents in the face of a heat warning is stanley cup sued by Environment Canada for Friday, June 25 to Tuesday, June 29.Environment Canada is warning of a dangerous, long-duration heat wave th kubki stanley at will affect the vast majority of B.C., with temperatures in the Lower Mainland ranging from 34 to 38 C ndash; and humidex values reaching the high 30s to low 40s.An exceptionally strong ridge of high pressure will develop over British Columbia, likely resulting in record-breaking temperatures, a weather alert from Environment Canada says. The duration of this heat wave is concerning as there is little relief at night with elevated overnight temperatures. This record-breaking heat event will increase the potential for heat-related illnesses.The city is offering up this list of tips to help keep everyone ndash; humans and animals alike ndash; safe in the heat:1. STAY HYDRATEDDrink cool beverages  pref stanley cup erably water  regardless of your activity level. Donrsquo;t wait until you are thirsty.If your health-care provider generally limits the amount of fluid you drink or has you on water pills, ask about increasing the amount of water you can drink while the weather is hot.2. KEEP COOLSpend the hottest hours of the day out of the sun and heat in a cool location like an air-conditioned facility when possible, following COVID g
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